Membership Services

Here is a general survey of the SBHAQ's mandate and of the services it offers to its members:

• Support and encourage research into the causes of spina bifida, in order to help improve treatment and prevention methods.
• Disseminate information relating to spina bifida and hydrocephalus in its publication The Spinnaker. Organise information sessions that educate the public and train individuals in coping mechanisms, produce educational material, promotional tours and awareness programs throughout Quebec.
• Monitor the development of services that will adequately respond to the needs of people with spina bifida and their families.
• Provide consultation and referral services.
• Raise awareness in the population of spina bifida and preventive measures.
• Assume a leadership role and co-ordinate activities and information with regional associations in order to pool ideas and experience throughout Quebec.
• Prepare and supervise the dissemination of publicity for the various media, in order to ensure that the message of the association be uniform and in accordance with already established policies.
• Assume a political role with government authorities and other decision-making powers on all questions concerning the social integration of people with spina bifida.
• Provide support to regional associations by offering expertise and tools that will help them plan, organise and promote their concerns and messages, etc.

The SBHAQ places major emphasis on partnership and mutual consulting with other organisations in the areas of community, public or parapublic advocacy groups, in order to improve the services that will adequately respond to the needs of people with spina bifida.

We actively collaborate with the following organisations on advocacies they share with us: education, social and school integration, integration in daycare, adapted transportation, equity, family policy, employment, etc.

• SEMO CRIT
• COPHAN
• ARUTAQ
• OPHQ
• AIM-CROIT
• AQEHPS
• GIRAFE
• CAMO
• ETAPE
• ISEHMS

Please consult our links in order to obtain the full names and addresses of these organisations.